Title palliative care.... Doctor, Nurse, PSW, or Volunteer. In reality they are facilitators, coaches, a guide or caring friend. They offer kind, nonjudgmental support and guidance. They help people walk through some of the most difficult days of their life as they say good-bye to a loved one and/or the person who is dying.
Palliative Care people are unique individuals because...
They are willing to walk alongside another person in whatever journey they’re on without judging them, making them feel inadequate, trying to fix them, or trying to impact the outcome. When they are with someone, they open their hearts, offer unconditional support, and bring this person to a new level of experience with the meaning of love.... one to another.
As a Hospice Volunteer and Bereavement Counselor / Grief Group Facilitator, friends and family often ask "It must be hard." "How do you do it?"; "Are there secrets to not getting overly involved in their life?"...... This is my response.
"Yes it is hard..... but there is a way of being and sharing with others that honors their individuality, plus it gives them the dignity and respect they deserve as they live their final days. This way of being also supports the caregiver(s) and family members as they say good-bye to their loved one."
- Encourage people to trust their own intuition and judgement. Most already know the "right" action to be taken and lust need to believe in themselves that they can do what must be done. There is rarely a right or wrong way to be with a dying person. Just be yourself and do the best you can.
- Information and emotional overload abound during these times. Give people only as much information as they can handle. Don't show what you know by using medical terms or ten-syllable words. Keep answers short and to the point. Help them understand what is happening and what may be next. Dying is a normal process and it is often harder on the observer that the individual who is passing.
- No one wants to make a wrong decision when someones life is ending. Family will often ask for your direction on what to do next..... Decision making is theirs, so don't take their power away from them. Help them work through their options, emotions and feelings. The final decision is theirs to make.
- Keeping my ego at bay. As I arrive I visualize hanging my own ego up on a hanger. This is their journey, not mine. I take no power from them. I make no judgments on who they are, their beliefs or actions. I am not a surrogate decision maker.
- We most often fail at things we do for the first time. (That is how we learn). Supporting a family member who is dying (if the first time) leaves lots of room for mistakes or new learning's. (Giving a needle; feeding; bathing or toileting.) Help them feel safe enough to fail; not to get it right the first time is O.K.. To be nervous about trying new things or having new responsibilities for their loved one are normal.
- Provide guidance and help with humility and thoughtfulness. Again, this is not your journey, it is theirs. LISTEN to their thoughts, fears and worry. Just listening is sometimes the greatest gift you can give. No judgement, no "other ways of seeing it" or imposing your values or beliefs..... Just listen.
On leaving their home or hospital you can get your ego back off the hanger and be on your way.
So my response to questions from friends and family....
" On arrival to their home, I place all of my daily trials and tribulations in an imaginary box on the front seat of my car. This visit will be about them / not me. When I leave, I take my stuff out of the box and place theirs in the box..... until our next visit."
