Showing posts with label Palliative. Show all posts
Showing posts with label Palliative. Show all posts

Monday, December 10, 2018

Grief and the Holidays.... It's Hard!





Hosting an
“All feelings welcome” dinner

For the full story..... (control and click)

For people struggling with grief or other challenges, the holidays—and all the cheer
  that goes with them—can be a painful reminder of what they lost or yearn for. 
There are things we can do to make the holidays land a little more gently—both for
 ourselves and the people we care about. One is bringing everyone together around the dinner table.





If you want to open your home to loved ones who are struggling this holiday season, 
our friends at The Dinner Party are here to help. They’re an organization focused on
turning what can be an isolating experience—like grief—into a source of 
meaningful connection, using the age-old practice of breaking bread. Here, they share
their recipe for planning an event where guests can let their guard down and openly share
whatever they’re feeling—without fear of ruining the mood or not being in the “holiday spirit.” 
For step by step guidelines on how to host...... go to


Also visit:










Friday, July 17, 2015

Loss, Grief & Rebuilding the box that holds your life



Coping with the loss of a close friend or family member, adjusting to a new and different life, is one of the hardest challenges any of us will have to conquer. When we lose a spouse, sibling, child or parent our life as we knew it is placed in a box and shaken vigorously. Nothing makes sense anymore and we go through days half awake and half in a fog. It now becomes our task to put the box (our life) back together.... but how? 

Death is accepted as a natural part of life, (until it is one of our love ones who died). Then we do not accept it; understand it or know how to "get over it". We experience shock and confusion, sadness or even depression. 

Grieving is an important process that will at times be unbearably painful..... but it is grief that also helps us heal and reorder our life.... We start to rearrange our box, we begin to do more than exist, we start to live again. It may take months or years to come to terms with a loss. There is no “normal” time period for someone to grieve. Grief knows no timeline, it comes when it wants and stays as long as it chooses to.

In time we will all experience loss, grieve  and then continue on with our own lives. People are more resilient than they realize and can often cope with support from family and friends. Grief is sometimes the catalyst for a renewed sense of self and can offer purpose and direction to life. But some people struggle with grief for longer periods of time and feel lost at carrying out their daily activities. Some will experience complicated grief and could benefit from the help of a person who specializes in grief counselling. 

Rebuilding the box that holds your life    


Talk about your loved one. At first you may not be able to say his/her name without chocking or tears, but in time you can recall funny moments, old jokes, special events and  tender memories.

Accept your feelings.  YOU ARE NORMAL! It is painful to have someone you love die.  You are not going crazy; you are not losing it; this is grief healing you.

Take care of yourself and your family.  Make time for outings, board games or meals together (with no electronics); one-on-one walks, or gym time. Being together is one of the best ways to keep moving forward. 

Reach out and help others dealing with the lossRemember and celebrate the life of your loved one.Your loved one lived. Celebrate and honour their life by remembering anniversaries; special times of the year, holidays; helping out their favourite charity; telling their story or just looking at pictures from time to time. Remembering them is the price of loving them; It is also the reward.

Others can help (let them)
Grieving individuals look for answers to help come to terms with death. Here are some thoughts on moving forward.





Remember others are grieving too. You can find normalcy in your grief by sharing with others and they sharing with you. Children grieve too, so do not forget to help them better understand what has and is happening.Professionals are trained to help people better handle the fear, guilt or anxiety that can be associated with the death of a loved one. If you need help dealing with your grief or managing a loss, consult with a counselor or other professional who specializes in Grief / Bereavement.
 


Monday, March 16, 2015

Holding Hands with a dying person....

Title palliative care.... Doctor, Nurse, PSW, or Volunteer. In reality they are facilitators, coaches, a guide or caring friend. They offer kind, nonjudgmental support and guidance. They help people walk through some of the most difficult days of their life as they say good-bye to a loved one and/or the person who is dying.

Palliative Care people are unique individuals because...
They are willing to walk alongside another person in whatever journey they’re on without judging them, making them feel inadequate, trying to fix them, or trying to impact the outcome. When they are with someone, they open their hearts, offer unconditional support, and bring this person to a new level of experience with the meaning of love.... one to another.

As a Hospice Volunteer and Bereavement Counselor / Grief Group Facilitator, friends and family often ask "It must be hard." "How do you do it?"; "Are there secrets to not getting overly involved in their life?"...... This is my response.


"Yes it is hard.....  but there is a way of being and sharing with others that honors their individuality, plus it gives them the dignity and respect they deserve as they live their final days. This way of being also supports the caregiver(s) and family members as they say good-bye to their loved one." 

  • Encourage people to trust their own intuition and judgement. Most already know the "right" action to be taken and lust need to believe in themselves that they can do what must be done. There is rarely a right or wrong way to be with a dying person. Just be yourself and do the best you can.
  • Information and emotional overload abound during these times. Give people only as much information as they can handle. Don't show what you know by using medical terms or ten-syllable words. Keep answers short and to the point. Help them understand what is happening and what may be next. Dying is a normal process and it is often harder on the observer that the individual who is passing.     
  • No one wants to make a wrong decision when someones life is ending. Family will often ask for your direction on what to do next.....  Decision making is theirs, so don't take their power away from them. Help them work through their options, emotions and feelings. The final decision is theirs to make. 
  • Keeping my ego at bay.  As I arrive I visualize hanging my own ego up on a hanger. This is their journey, not mine. I take no power from them. I make no judgments on who they are, their beliefs or actions. I am not a surrogate decision maker. 
  • We most often fail at things we do for the first time. (That is how we learn). Supporting a family member who is dying (if the first time) leaves lots of room for mistakes or new learning's. (Giving a needle; feeding; bathing or toileting.) Help them feel safe enough to fail; not to get it right the first time is O.K.. To be nervous about trying new things or having new responsibilities for their loved one are normal.
  • Provide guidance and help with humility and thoughtfulness. Again, this is not your journey, it is theirs. LISTEN to their thoughts, fears and worry. Just listening is sometimes the greatest gift you can give. No judgement, no "other ways of seeing it" or imposing your values or beliefs..... Just listen.
On leaving their home or hospital you can get your ego back off the hanger and be on your way. 

So my response to questions from friends and family....

 " On arrival to their home, I place all of my daily trials and tribulations in an imaginary  box on the front seat of my car. This visit will be about them / not me. When I leave, I take my stuff out of the box and place theirs in the box..... until our next visit."


Bill can be reached at privatesessions@rogers.com



Sunday, December 14, 2014

It didn't happen on your watch Doc.... It just happened....



A recent article I read spoke of the 2nd year of grieving.....
I have been in a dark hole the last few weeks, I was not just a grieving single mother. Tears, bad thoughts, withdrawal, extreme anger and sadness, loneliness....these emotions have surrounded me. It's all too easy to get lost in this, struggling round and round at the bottom of the whirlpool, with an overwhelming feeling that if I was religious or more spiritual, and believed totally that I would see him again, then it wouldn't be so bad......but I'm not.

Somewhere, deep within me, I knew I could crawl out of the sludge at the bottom of the hole eventually. I remembered the glimpses of hope I had in the first year of grief. I remembered my mantra of "joy and purpose". I remembered the self made promise that I would not allow myself to be worse in the second year of grief, like all the books say, yet here I was, drowning in the reality that my boy was gone. I felt like I had a small collection of friends that I let my guard down with, and I begged them not to think I was depressed just because I always cried with them. The rest of the time I wore my masks and became more reclusive.

Then I met someone new to grief. His wife has breast cancer and he had tears in his eyes telling me their story. I shared my story and tears in return. It was an odd moment, one shared by two strangers in the parallel universe of suffering. I thought no more of it until I received a card from him with the following amazing words:



"A good Doctor deals with the known-known's. A great Doctor deals with the known-unknown's, but no Doctor can deal with the unknown-unknown's. It didn't happen on your watch Docit just happened while you were on watch...."


                         



Yep, it just happened. There is no sense to be made of it. It wasn't my fault. I have to stop blaming myself, hating myself. I have to move on, if only at a crawling pace. The depth of grief represents the love we have for the one we've lost, and a parent's love is immeasurable. I'm struggling. I'm exhausted. I accept that. Like a pregnant woman who only sees the other pregnant women in the crowd, I am only seeing the death, loss and sadness around me, and there is plenty of that. I give everything I have to work and to my daughter and to grief. There is nothing left for anyone else, and there is nothing coming back for me. There has to be some way to make this pain better.

Note to Readers:
"There has to be some way to make this pain better." The pain will diminish; the thoughts will change from being focused "on the death" or "how he/she died" to "how he/she lived". Time will make this happen..... at the appropriate time.... you can not rush it; but it will happen.


Monday, December 8, 2014

“Live as if you were to die tomorrow....(Gandhi)

 “Live as if you were to die tomorrow.  
Learn as if you were to live forever.” 

In the midst of my sorrow I now realize this tragic loss taught me three important things.  

First, the worst things can happen to the best people for no obvious reason at all.  

Second, most people, even the ones you don’t think care, are genuinely good people who do care.
  
Third, just as it is difficult to see all the opportunities life gives you until you’re looking back, it is virtually impossible to fully understand certain life circumstances until they actually happen to you.

It’s a variation of this final point that I want to explore – 
Seven important life lessons almost everyone learns the hard way, (eventually).

1.  The people you lose remain a part of you.

Someday you will be faced with the reality of loss.  As life goes on, days rolling into nights, it will become clear that you never really stop missing someone special who’s gone, you just learn to live around the gaping hole of their absence.

When you lose someone you can’t imagine living without, your heart breaks wide open, and the bad news is you never completely get over the loss.  You will never forget them.  However, in a backwards way, this is also the good news.  They will live on in the warmth of your broken heart that doesn't fully heal back up, and you will continue to grow and experience life, even with your wound.  It’s like badly breaking an ankle that never heals perfectly, and that still hurts when you dance, but you dance anyway with a slight limp, and this limp just adds to the depth of your performance and the authenticity of your character.

2.  The pursuit of happiness is about finding meaning.

Pursuing happiness is not at all the same as being happy, which is a fleeting feeling dependent on momentary circumstances.  If the sun is shining, by all means bask in it.  Happy times are great and often fun-filled, but happy times pass, because time passes.  This is something we rarely grasp at first.

The lifelong pursuit of happiness, on the other hand, is more elusive; it’s not based on a particular outcome.  What you are really pursuing is meaning – living a meaningful life.  It starts with your “why.”  (Why are you doing what you’re doing with your life?)  When your “why” is meaningful, you are pursuing happiness.  There will be times when things go so wrong that you barely feel alive.  And there will also be times when you realize that being barely alive, on your own terms, is better than living a lifeless existence for eighty years on someone else’s terms.  The pursuit isn't all or nothing; it’s all AND nothing, with ups and downs and worthwhile lessons along the way.

In other words, happiness comes most easily when you know what you’re doing, believe in what you’re doing, and love what you’re doing (and who you’re doing it with), regardless of how things turn out.

3.  Seeking validation from others invalidates YOU.

Has the fear of rejection held you back?  Have you ever been so fearful of what others might think or say about you that it kept you from taking positive action?  I bet you’re shaking your head, “yes.”
It’s time to change your mindset…

Today, the only person you should try to be better than is the person you were yesterday.  Prove yourself to yourself, not others.  You are GOOD enough, SMART enough, FINE enough, and STRONG enough.  You don’t need other people to validate you; you are already valuable.
If someone says “no” to you, or if someone says something negative about you, that doesn’t change anything about YOU.  The words and opinions of others have no real bearing on your worth.  Certainly it can be helpful and desirable to make a good impression in certain situations, yet it’s not the end of the world when you are faced with rejection.

It’s great to receive positive feedback, but it simply doesn't always happen.  That’s OK though, because you know where you’re headed and you know your true worth does not depend on the judgment of others.  When you set out to make a true difference in life, there will be those who disagree with you, those who ignore you, and those who flat out reject your ideas and efforts.  Look beyond them, step confidently forward, do what must be done, and let them think what they will.

4.  Regret hurts far worse than fear.

When we give in to our fears, we have a harder time looking at ourselves in the mirror.  Sadly, very few of us escape learning this lesson firsthand.  If you have already experienced this a time or two, you know what you need to do.

It is only when we risk losing that we truly open the possibility to win.  Whether it is quitting your job to build a business, running a marathon, or traveling to unknown parts of the world, any worthy endeavor requires risk, struggle and sacrifice.  Some of these things may even terrify you, but ask yourself if these fears are stronger than the most powerful of fears, the fear of a wasted life?

If you've never lost your mind, you've never followed your heart.  It’s better to look back on life and say, “I can’t believe I did that,” than to look back and say, “I wish I did that.”  Don’t let time pass you by like a hand waving from a train you desperately want to be on.  Don’t spend the rest of your life thinking about why you didn't do what you can do right now.  Live your life.  Take risks.  Feel passion.  Discover love.  Run free.

5.  Life is too unpredictable for rigid expectations.

When you stop predicting and expecting things to be a certain way, you can appreciate them for what they are.  Ultimately you will realize that life’s greatest gifts are rarely wrapped the way you expected.

With a positive attitude and an open mind, you will find that life isn’t necessarily any easier or harder than you thought it was going to be; it’s just that “the easy” and “the hard” aren't exactly the way you had anticipated, and don’t always occur when you expect them to.  This isn’t a bad thing; it makes life interesting.

Ninety-nine percent of the time life delivers the experiences that are most helpful for your personal growth.  How do you know it’s the experience you need?  Because it’s the experience you’re having.  The only question is:  Will you embrace it and grow, or fight it and fade?

The key, of course, is to accept that not everything is meant to be.  When things don’t turn out how you expected, you have to seriously sit down with yourself and come to grips with the fact that you were wrong about it all along.  It was just an illusion that never really was what you thought it was.  It’s one of the most difficult realizations to accept, to realize that you feel a sense of loss, even though you never really had what you thought you had in the first place.

6.  When you try to run away, you end up running in place.

“Don’t think about eating that chocolate donut!”  What are you thinking about now?  Eating that chocolate donut, right?  When you focus on not thinking about something, you end up thinking about it.

The same philosophy holds true when it comes to freeing your mind from a negative past experience.  By persistently trying to move away from what you didn't like and don’t want, you are forced to think about it so much that you end up carrying it’s weight along with you.  But if you instead choose to focus your energy on moving toward something you do like and do want, you naturally leave the negative weight behind as you progress forward.

Bottom line:  Running away from your problems is a race you’ll never win.  Move TOWARDS something instead of AWAY.  Rather than trying to eliminate the negative, focus on creating something positive that just happens to replace the negative.

7.  Unanticipated hardships are inevitable and helpful.

Nobody in this world is going to blindside you and hit you as hard as life will.  Sometimes life will beat you to the ground and try to keep you there if you let it.  But it’s not about how hard life can hit you, it’s about how hard you can be hit while continuing to move forward.  That’s what true strength is, and that’s what winning the game of life is all about.


When you have a lot to cry and complain about, but you prefer to smile and take a step forward instead, you are growing stronger.  Work through your struggles and hardships.  Even when it feels like things are falling apart, they’re not.  Take control of your emotions before they take control of you.  Everything will fall into place eventually.  Until then, learn what you can, laugh often, live for the moments, and know that it’s all worthwhile in the end.

Afterthoughts

Gandhi once said, “Live as if you were to die tomorrow.  Learn as if you were to live forever.”  I love this quote.  There’s no doubt that every day is a gift, and the gift is an opportunity to live, to learn, and to grow.
Be a student of life.  Indulge in it and absorb all the knowledge you can, while you can.  You may have to loose some things to gain some things, and you may have to learn some things the hard way.  That’s OK.  All experiences are necessary.  The purpose of your life is to live it in full, to partake in it to the utmost, to reach out with an open mind and an honest heart for the newest and richest experience being offered.

written by Marc and Angel

Monday, November 3, 2014

KEEPING IT REAL is my new slogan....

KEEPING IT REAL is my new slogan....

Life is good
Death Sucks

But let's keep it real....



So many people are effected by sickness and disease these days.... So many struggles and so many lose their battle..... We hear about them everywhere. TV News, Newspapers, Facebook and from family and friends who knew them.

The thousands of success stories do not make the media. This leads one who is sick to believe this is the end of their life.... 
I am here to tell you it does not!

                                              First decision is: 

                                                I will fight this
                                        or I'll give in and let go.



Second reality
You don't have to do this alone.
You will be surrounded by people who care
and as they create your circle of support, your
strength will improve and you will move
forward in your recovery!


Third realization 
is SUCCESS comes in
different shapes and sizes.
You will always hold the last piece of your puzzle.
ATTITUDE, BELIEF, CONVICTION

 As the bridge to renewed health nears completion,You will find yourself closer to  recovery. Possibly not as healthy as you once were... but healthier than before, You will retain one key message to yourself  because of this journey....
 "I CAN DO IT!" will become you new belief!

Today there are so many WINNERS
there is no reason why YOU can not be one of them!
Bill R





Tuesday, September 2, 2014

Who I was is gone.... WHO AM I NOW?














(Parents rarely let go of their children, so children let go of them. They grow up and move on. Move away and start their family. The life their parents knew was defined with children at home. Now empty nesters  the parents create a new role as parents and a couple; a new definition of who they are. A different role that is a mixture of sadness for what is no more and questions about what is to be.)  

“The grief process is not only about mourning the loss, but getting to know yourself as a different person”.

The same redefinition of who am I now?” occurs in grief.

“You lose yourself, your identity, meaning, purpose, values, your trust”.
  • After years of devoting all your spare time as a care-giver to a loved one, “now what do I do,who am I now? ”
  • As a parent, “now who am I?” What do I say when people ask “Do you have any children?”
  • A life long friend dies and you feel lost, not knowing anyone you trust as much to share your deepest secrets with.
  • If a brother / sister dies, you ask; “Am I still a brother / sister?”
  • When a grandparent dies you might feel your family history goes with them. Children's first experience with human death is often when this happens.

There is a need to redefine who you are.
Not for others, but for yourself.

A new definition of WHO AM I NOW?”

Here are five suggestions on how to try and redefine who you might become.... (the essence of you).

NO NEED TO RUSH: First you need to give yourself time to grieve. Seek out local Grief Groups or Community Grief Counselling. You will know when you are ready to give consideration to these suggestions. 

HOBBIES
Have you ever wanted to try a hobby but never had the time? (Scrap-booking, painting, singing, story teller, photography) Find a friend with a similar interest and join a group together.

VOLUNTEERING is an excellent way to meet new people. Cook for people who live alone; be a hospital friendly visitor; join a community committee planing special events.... give back and feel good for having assisted others in some way.

ADULT EDUCATION
Sign up for a general interest course or to get a certificate or degree.

TRAVEL is an option as well. Visit family who live far away from you. Friends you have not seen for a long time.

FAITH BASED ACTIVITIES
Join a church or if you already belong, see which groups meet, when and what they do.


There are resources in most communities, a quick note to myself and I will do some homework, sending you the information. You can also seek out your local volunteer bureau for a list of organizations.

The hardest step in regaining the sense of control is to ask for assistance. 
This is not a weakness, it is a strength.





Thursday, August 21, 2014

My Grief Journey….. How Do I know I am moving forward?

My Grief Journey…..
How Do I know I am moving forward?

As you travel on a grief journey it is often difficult to know (or believe) you are moving forward. 

There is no magic Grief Measuring Tape, no timeline to follow or a special day when you wake up and say “I've arrived, the journey is over!”.

For some the journey never starts; others say it was after the third month that it really got tough; and for others they share how the second year of their loss was the hardest.

Since the grief journey knows no order you will have moments or days when you feel and believe nothing has changed. You are still at the beginning of the journey.  A song, a smell, a gathering or a special anniversary / celebration can hit you without warning in the most difficult situations. This is normal, you are not going crazy; you are not weak…. 
IT IS NORMAL; YOU ARE NORMAL!

To travel back to where you were before grief showed up uninvited will not take as long. You move back to your last step quickly and keep moving on from there.

With small steps, living each day as best you can, the time will come when you will be able to turn around and see that "yes, I have traveled along the grief journey, I am still on it, but I have moved forward."



Here are some signs to look for that say "you are progressing":

  • You don’t cry, choke or feel weak at the mention of your loved one’s name.
  • Tears don’t always appear when you think of your loved one, or see their picture.
  • Memories more often bring comfort or a smile, not pain and tears.
  • You make plans with others or on your own knowing they don’t include your loved one any more.
  • You realize your life has changed. You are someone different than when your loved one was with you; and you are O.K. with that.
  • You realize and accept that you are still living, although your love one is not.
  • The cause of death isn’t the emphasis anymore.
  • You know in your heart that even though your loved one died, the love between you can never be destroyed. It will live on forever as will your memories of them.
  • When your love for them is what you remember most.
  • You wonder how your loved one would have handled it if you had died first… and smile.
There are no rules to a grief journey. Each of us starts as a result of the death of a loved one…. There the similarities end. Our paths may cross at times (but this is not a spectator sport) and we must (each of us) give grief the time and energy it requires so we can move on and live. 


NOTES:
There are resources in most communities, you can also seek out your local volunteer bureau for a list of organizations that can assist you.