Saturday, November 8, 2014

What does time have to do with grief?

Q: What does time have to do with grief?

A: Everything. 

Like most of us; in your everyday life the clock and the calendar run your days and nights.   Time is a commodity that is precious to you, but once gone you cannot buy more or bring back what's already past. There is no warranty on time.

We live in a society that reminds us that every moment counts, and like most of us you try to multitask, cramming as much as you can into every day. Office/work, home chores, child needs, our own needs and the needs of those in our life circle. (friends, family, co-workers)

As you are grieving your loved one(s), time does stand still.  All you know and believe about time changes. You function daily to some degree but more in a haze or fog that starts and ends with each day. You get some things done but you don't know how you managed.

Time stands still.
You question the world "How dare it function as before.....
Don't they know you have died? Don't they know I am grieving; my life is in shambles?"



Time for grieving has a limit. (Not)
Your employer gives you three days off to grieve, then back to work you go.... or use up some vacation time.

Friends will understand for a month or two that you need to talk about your loved one or even openly cry . During this time your friends will probably seem to be responsive to your needs. They'll bring frozen dinners or telephone just to say hi. But when "time is up" they may start to give hints or say out loud  "Don't you think that it’s time to move on; it's time to get over “it”". "Are you still in that slump?" " Deal with it, it's been 6 months now!"

Some friends or family members may start to be uncomfortable with your need to dwell on your sadness. They do not appreciate that it takes time to readjust our life.  

True support is from those who are willing and able to walk along side you on your personal journey of grief, and who will encourage you to determine when your “time’s up”. This could take months, even years. We never get "Over It" we just learn over time to change the focus of how they died to the good memories, fun times or quiet private moments shared.

Doing Time.
Grief may make you feel locked in your own version of hell. You won’t like who you are. You won’t like that your loved one has gone. You won’t like it that your friends can’t make you feel better. You just want out of here, and you're not sure you want to do the work that grief requires in order to be set free from this grief jail. Some of you will remain in this uncomfortable place for a short time while others may "seem over it" sooner, leaving you to feel you have been given a longer sentence.



Wasting time.
While in real life our pride has us as a master at multitasking, in the land of grief you are much less sure of yourself. You find it hard to make decisions, because of your new situation you don’t trust yourself to make the right choice. You want someone else to be responsible if something goes wrong. Sometimes your wasting time is about not having the energy to get started. You are physically exhausted and your body refuses to make an effort to reclaim your former self.


Looking back in time
When you grieve you spend most of your time, at least at first, looking back. It seems more in control that way. That’s where your missing loved ones are. If you were to look forward, that would mean you have to imagine your  life without the loved one you lost. And that’s what you aren't ready to accept--not yet. So you spend a lot of time thinking how you should have been able to prevent their dying, or wondering if you used your time with them well. In time as you remember the good times, bad times, silly and sad times you can see these as moving forward in your grief journey.



Firsts are how you measure the first year or two
It is natural for you to gauge your life after a loss as you anticipate and then go through the FIRST TIMES....



First day, first week, first month, first time you go out, the first time you are back to school, or church, or work. First Summer vacation, first Christmas, first Winter vacation, first time you laughed. These first times are like benchmarks, notches in your belt that prove you are surviving when you weren't sure you wanted to, or didn't know you could. Another first time is the anniversary of your loved ones death or His/her birthday or your child's birthday with out mom / dad. Later in life first times might include Graduation or school events, marriages of your children or birth of a grandchild. While these may occur years later, the loss, sad feelings, regrets can all return as if the death was yesterday..... This only means you are normal.

Mealtime
There’s an empty chair at the table. There’s the conversation that seems to be just noise, having little to do with the absent one about whom you are all thinking but not daring to speak. You still prepare more food than you now need because we haven’t yet figured out how to cook for one less person.
Sometimes the food seems to have no taste, and is not able to do what you want it to do; to fill that huge hole (empty feeling) within you.



Time out
Sometimes what you need to do is to take a time out from your regular activities. Have a "Me Day" to reflect on what has happened to your personal world. It’s in the quiet time, when you shut off your every day thinking and empty out the daily chatter in your head. Others will have to be okay with your need to bow out for a while. Remember that during grief your job is to take care of yourself, not to take care of your friends. When it’s time to re-enter a normal routine, it’s your choice what you will reinstate and what you decide to lay aside. Loss tends to redefine your priorities. What used to be important may not be important now. And that’s not necessarily a bad thing.

Time heals what reason cannot.
Time will change things. The intensity you experience when grief is new, where you can see nothing but your loss, and where every moment is filled with thoughts of the one who died will gradually diminish and become softer. Time forces the big picture of life back into your vision whether you like it or not.

In the months (maybe years) following a loss, life will eventually start to re-emerge, and life in your world will once again seem possible. This will not happen because you come to understand the death more clearly. It will happen with the passage of time, the unanswered questions will become easier to live with and each "first" experience will bring you closer to understanding your strength and ability to build a new you in a new world.



Time will keep some of your grief forever.
The scars of your grief will remain and you may find yourself ambushed by a fresh wave of grief at any time. But needing to know the answers to the “why” questions won’t seem quite so important as it once was.


Friday, November 7, 2014

What words of wisdom would you offer...........

"Brain Tumour"

What words of wisdom would you offer to a newly diagnosed person or their family?



I was diagnosed in March. There are two things I would say! First, No matter what anyone tells you they don't know the "you factor"! Your determination and your drive to beat this cancer! Second, you have to be an active participant in your own life!
Debbie

My husband (was diagnosed in July 2009) and we kept telling each other to stay strong, stay positive and lean on each other and we will make it through. We did. As his caregiver I had to be good to myself as well. Eat right, sleep enough, find a friend to talk with about my worry, pain, sadness and anger.
Mary


My husband was diagnosed in February 2014. It's still pretty new but I would say to stay off the generic pages of the Internet; stay positive and ask for help when you need it!!
Diane

This is your opportunity to honestly show yourself and everyone around you how strong you are! I was diagnosed with a serious brain tumor October 5 and had surgery October 7. I have 4 kids and all of my thoughts were I needed to stay strong and survive this for them! I am have been referred by my doctors as "one in a million" so I am proud to say miracles really do happen!! I am thankful for each and every day I have! Cherish the time you have with the ones who matter most! Hugs to everyone.
Susan




Every person is different in how they handle this monster. Most times I just don't know what to say but it would start with, "just be honest" in your thoughts with yourself and others. Don't sugarcoat or say false things. It really does suck big time and my heart goes out to each and every person.
Sharon


I know how hard it is in the initial stage when you find out and all is a blur... best I can suggest is to find a person to be a shoulder to cry on and an ear to vent to. The main things I would say is that there are people who will be there for you, and maybe some who you thought would be, but are not....”
Fred

Take lots of pictures even when you don't feel like it. You and your family are your best advocate. There are resources / use them. Most of all find a brain tumour support group and you will find hope and friends to last a lifetime. Of course Play to Win!
Silvia

My daughter just completed her chemo treatments in May 2014. I would like other newly diagnosed families to know that it’s okay to be sad and mad sometimes. You don't need to pretend everything is okay. But take all the help you are offered; and take it each day one at a time. Focus on the positives, the love from family and friends. For me, leaning on my faith, when things seemed darkest was a God send.
Sophia, 



Do not be afraid to ask for help. The people that love and support you will be glad to help in any way they can. Be patient. Time will heel things eventually. Your hair will grow back. Your scars will heel. Your scars will eventually not be so sensitive and tender. You will become stronger, you will heal!
Parent of a child with a pediatric brain tumour


For additional resources call your local Cancer Centre and/or ask your Doctors advice.

Bill R 
Note:
Words of Wisdom are direct quotes from patients, survivors and family members and are offered as insight into others' experiences with a brain tumour only. They are not meant as advice, always consult your health care team with any questions. Names of contributors have been changed.



Monday, November 3, 2014

KEEPING IT REAL is my new slogan....

KEEPING IT REAL is my new slogan....

Life is good
Death Sucks

But let's keep it real....



So many people are effected by sickness and disease these days.... So many struggles and so many lose their battle..... We hear about them everywhere. TV News, Newspapers, Facebook and from family and friends who knew them.

The thousands of success stories do not make the media. This leads one who is sick to believe this is the end of their life.... 
I am here to tell you it does not!

                                              First decision is: 

                                                I will fight this
                                        or I'll give in and let go.



Second reality
You don't have to do this alone.
You will be surrounded by people who care
and as they create your circle of support, your
strength will improve and you will move
forward in your recovery!


Third realization 
is SUCCESS comes in
different shapes and sizes.
You will always hold the last piece of your puzzle.
ATTITUDE, BELIEF, CONVICTION

 As the bridge to renewed health nears completion,You will find yourself closer to  recovery. Possibly not as healthy as you once were... but healthier than before, You will retain one key message to yourself  because of this journey....
 "I CAN DO IT!" will become you new belief!

Today there are so many WINNERS
there is no reason why YOU can not be one of them!
Bill R