Saturday, November 8, 2014

What does time have to do with grief?

Q: What does time have to do with grief?

A: Everything. 

Like most of us; in your everyday life the clock and the calendar run your days and nights.   Time is a commodity that is precious to you, but once gone you cannot buy more or bring back what's already past. There is no warranty on time.

We live in a society that reminds us that every moment counts, and like most of us you try to multitask, cramming as much as you can into every day. Office/work, home chores, child needs, our own needs and the needs of those in our life circle. (friends, family, co-workers)

As you are grieving your loved one(s), time does stand still.  All you know and believe about time changes. You function daily to some degree but more in a haze or fog that starts and ends with each day. You get some things done but you don't know how you managed.

Time stands still.
You question the world "How dare it function as before.....
Don't they know you have died? Don't they know I am grieving; my life is in shambles?"



Time for grieving has a limit. (Not)
Your employer gives you three days off to grieve, then back to work you go.... or use up some vacation time.

Friends will understand for a month or two that you need to talk about your loved one or even openly cry . During this time your friends will probably seem to be responsive to your needs. They'll bring frozen dinners or telephone just to say hi. But when "time is up" they may start to give hints or say out loud  "Don't you think that it’s time to move on; it's time to get over “it”". "Are you still in that slump?" " Deal with it, it's been 6 months now!"

Some friends or family members may start to be uncomfortable with your need to dwell on your sadness. They do not appreciate that it takes time to readjust our life.  

True support is from those who are willing and able to walk along side you on your personal journey of grief, and who will encourage you to determine when your “time’s up”. This could take months, even years. We never get "Over It" we just learn over time to change the focus of how they died to the good memories, fun times or quiet private moments shared.

Doing Time.
Grief may make you feel locked in your own version of hell. You won’t like who you are. You won’t like that your loved one has gone. You won’t like it that your friends can’t make you feel better. You just want out of here, and you're not sure you want to do the work that grief requires in order to be set free from this grief jail. Some of you will remain in this uncomfortable place for a short time while others may "seem over it" sooner, leaving you to feel you have been given a longer sentence.



Wasting time.
While in real life our pride has us as a master at multitasking, in the land of grief you are much less sure of yourself. You find it hard to make decisions, because of your new situation you don’t trust yourself to make the right choice. You want someone else to be responsible if something goes wrong. Sometimes your wasting time is about not having the energy to get started. You are physically exhausted and your body refuses to make an effort to reclaim your former self.


Looking back in time
When you grieve you spend most of your time, at least at first, looking back. It seems more in control that way. That’s where your missing loved ones are. If you were to look forward, that would mean you have to imagine your  life without the loved one you lost. And that’s what you aren't ready to accept--not yet. So you spend a lot of time thinking how you should have been able to prevent their dying, or wondering if you used your time with them well. In time as you remember the good times, bad times, silly and sad times you can see these as moving forward in your grief journey.



Firsts are how you measure the first year or two
It is natural for you to gauge your life after a loss as you anticipate and then go through the FIRST TIMES....



First day, first week, first month, first time you go out, the first time you are back to school, or church, or work. First Summer vacation, first Christmas, first Winter vacation, first time you laughed. These first times are like benchmarks, notches in your belt that prove you are surviving when you weren't sure you wanted to, or didn't know you could. Another first time is the anniversary of your loved ones death or His/her birthday or your child's birthday with out mom / dad. Later in life first times might include Graduation or school events, marriages of your children or birth of a grandchild. While these may occur years later, the loss, sad feelings, regrets can all return as if the death was yesterday..... This only means you are normal.

Mealtime
There’s an empty chair at the table. There’s the conversation that seems to be just noise, having little to do with the absent one about whom you are all thinking but not daring to speak. You still prepare more food than you now need because we haven’t yet figured out how to cook for one less person.
Sometimes the food seems to have no taste, and is not able to do what you want it to do; to fill that huge hole (empty feeling) within you.



Time out
Sometimes what you need to do is to take a time out from your regular activities. Have a "Me Day" to reflect on what has happened to your personal world. It’s in the quiet time, when you shut off your every day thinking and empty out the daily chatter in your head. Others will have to be okay with your need to bow out for a while. Remember that during grief your job is to take care of yourself, not to take care of your friends. When it’s time to re-enter a normal routine, it’s your choice what you will reinstate and what you decide to lay aside. Loss tends to redefine your priorities. What used to be important may not be important now. And that’s not necessarily a bad thing.

Time heals what reason cannot.
Time will change things. The intensity you experience when grief is new, where you can see nothing but your loss, and where every moment is filled with thoughts of the one who died will gradually diminish and become softer. Time forces the big picture of life back into your vision whether you like it or not.

In the months (maybe years) following a loss, life will eventually start to re-emerge, and life in your world will once again seem possible. This will not happen because you come to understand the death more clearly. It will happen with the passage of time, the unanswered questions will become easier to live with and each "first" experience will bring you closer to understanding your strength and ability to build a new you in a new world.



Time will keep some of your grief forever.
The scars of your grief will remain and you may find yourself ambushed by a fresh wave of grief at any time. But needing to know the answers to the “why” questions won’t seem quite so important as it once was.


Friday, November 7, 2014

What words of wisdom would you offer...........

"Brain Tumour"

What words of wisdom would you offer to a newly diagnosed person or their family?



I was diagnosed in March. There are two things I would say! First, No matter what anyone tells you they don't know the "you factor"! Your determination and your drive to beat this cancer! Second, you have to be an active participant in your own life!
Debbie

My husband (was diagnosed in July 2009) and we kept telling each other to stay strong, stay positive and lean on each other and we will make it through. We did. As his caregiver I had to be good to myself as well. Eat right, sleep enough, find a friend to talk with about my worry, pain, sadness and anger.
Mary


My husband was diagnosed in February 2014. It's still pretty new but I would say to stay off the generic pages of the Internet; stay positive and ask for help when you need it!!
Diane

This is your opportunity to honestly show yourself and everyone around you how strong you are! I was diagnosed with a serious brain tumor October 5 and had surgery October 7. I have 4 kids and all of my thoughts were I needed to stay strong and survive this for them! I am have been referred by my doctors as "one in a million" so I am proud to say miracles really do happen!! I am thankful for each and every day I have! Cherish the time you have with the ones who matter most! Hugs to everyone.
Susan




Every person is different in how they handle this monster. Most times I just don't know what to say but it would start with, "just be honest" in your thoughts with yourself and others. Don't sugarcoat or say false things. It really does suck big time and my heart goes out to each and every person.
Sharon


I know how hard it is in the initial stage when you find out and all is a blur... best I can suggest is to find a person to be a shoulder to cry on and an ear to vent to. The main things I would say is that there are people who will be there for you, and maybe some who you thought would be, but are not....”
Fred

Take lots of pictures even when you don't feel like it. You and your family are your best advocate. There are resources / use them. Most of all find a brain tumour support group and you will find hope and friends to last a lifetime. Of course Play to Win!
Silvia

My daughter just completed her chemo treatments in May 2014. I would like other newly diagnosed families to know that it’s okay to be sad and mad sometimes. You don't need to pretend everything is okay. But take all the help you are offered; and take it each day one at a time. Focus on the positives, the love from family and friends. For me, leaning on my faith, when things seemed darkest was a God send.
Sophia, 



Do not be afraid to ask for help. The people that love and support you will be glad to help in any way they can. Be patient. Time will heel things eventually. Your hair will grow back. Your scars will heel. Your scars will eventually not be so sensitive and tender. You will become stronger, you will heal!
Parent of a child with a pediatric brain tumour


For additional resources call your local Cancer Centre and/or ask your Doctors advice.

Bill R 
Note:
Words of Wisdom are direct quotes from patients, survivors and family members and are offered as insight into others' experiences with a brain tumour only. They are not meant as advice, always consult your health care team with any questions. Names of contributors have been changed.



Monday, November 3, 2014

KEEPING IT REAL is my new slogan....

KEEPING IT REAL is my new slogan....

Life is good
Death Sucks

But let's keep it real....



So many people are effected by sickness and disease these days.... So many struggles and so many lose their battle..... We hear about them everywhere. TV News, Newspapers, Facebook and from family and friends who knew them.

The thousands of success stories do not make the media. This leads one who is sick to believe this is the end of their life.... 
I am here to tell you it does not!

                                              First decision is: 

                                                I will fight this
                                        or I'll give in and let go.



Second reality
You don't have to do this alone.
You will be surrounded by people who care
and as they create your circle of support, your
strength will improve and you will move
forward in your recovery!


Third realization 
is SUCCESS comes in
different shapes and sizes.
You will always hold the last piece of your puzzle.
ATTITUDE, BELIEF, CONVICTION

 As the bridge to renewed health nears completion,You will find yourself closer to  recovery. Possibly not as healthy as you once were... but healthier than before, You will retain one key message to yourself  because of this journey....
 "I CAN DO IT!" will become you new belief!

Today there are so many WINNERS
there is no reason why YOU can not be one of them!
Bill R





Friday, October 24, 2014

R - U - Up to the challenge?





Tickets to terminally ill player's first college game sell out in minutes


By  |  
Since its cramped gym can only hold about 2,000 spectators, Division III Mount St. Joseph University readily accepted an offer to move its  Nov. 2 women's basketball season opener 13 miles east to the 10,250-seat Cintas Center at Xavier University.
Amazingly, even that wasn't enough to satisfy the overwhelming public demand to witness terminally ill freshman Lauren Hill achieve her dream of playing one final basketball game.
The roughly 5,000 upper-level tickets that went on sale for $5 apiece Wednesday morning sold out within 30 minutes, Lions athletic director Steve Radcliffe said Thursday. Mount St. Joseph is reserving the remaining seats to its game against Hiram College for students, guests of the athletic department and Hill's friends and family.
To accommodate interest from those who couldn't buy tickets or who live outside of Cincinnati, Radcliffe said Mount St. Joseph intends to stream the game on its website and is exploring the possibility of having it broadcast locally or nationally. Xavier University spokesman Tom Eiser said a decision on whether to televise the game could come as soon as Friday.
"The support has been incredible and inspiring," Radcliffe said. "We had planned to play this game on campus, but this thing has just gone so crazy and generated so much interest that now we're able to give another 8,000 people the chance to see the game in person. It's going to help raise money and awareness, and I think that's really positive."
The story of Hill's courage has inspired massive interest nationwide since WKRC-TV in Cincinnati, Yahoo Sports and other outlets first shared it last week.
Doctors don't expect Hill to live past December as a result of an inoperable tumor they discovered growing at the base of her brain stem last year. Fearful that Hill wouldn't be strong enough to fulfill her goal of playing college basketball for the first time, the 19-year-old Indiana native's parents asked the school to petition to have its Nov. 15 season opener moved up — a request the NCAA granted earlier this month.
Lauren Hill shows off a new Cincinnati Reds jersey (via @Reds)Lauren Hill shows off a new Cincinnati Reds jersey (via @Reds)Moving up the game was critical because Hill's symptoms have worsened the past few weeks. She told Yahoo Sports last week that her hand-eye coordination has deteriorated, she endures frequent headaches, dizziness and nausea and the right side of her body is so weak that her leg often gives out on her when she walks. She has attended practice with Mount St. Joseph's several days this week, but she typically can't last more than a few minutes on the floor without needing a rest.
"She was given the day off yesterday from practice and classes, but she was back today," Radcliffe said. "I know this is a challenge for her from the standpoint that her body isn't doing what she wants it to do, but she's there almost every day. She's putting it all in and embracing the fact she'll get to go on the floor, hear the crowd and get to play in a game."
Hill's story has captured so much attention that cards, letters and packages from across the nation have arrived at Mount St. Joseph addressed to her every day for the past week. On Tuesday, Hill received a visit at practice from Cincinnati Bengals defensive lineman Devon Still, whose four-year-old daughter is battling cancer. On Thursday, a jersey and a letter arrived from the Cincinnati Reds wishing Hill luck in her Nov. 2 game. 
What's most gratifying for Hill is the money and awareness she has raised to support the fight against pediatric cancer. Hill has Diffused Intrinsic Pontine Glioma (DIPG), a rare, inoperable pediatric brain tumor that primarily affects children ages 5-10 and kills 90 percent of victims within 18 months.
"Wow" is the only word repeating in my head right now, that's all I can think. Wow. This is unbelievable! Never did I ever think this would happen! I've never been so happy- my wish to spread awareness and play in a college game on the court wearing that jersey #22 is coming. I'm just still in shock right now at how many lives I've touched."
The support has been inspiring for everyone who knows Hill as well. Radcliffe views it as the silver lining to a sad but inspiring story.
"From my perspective as athletic director, I find it incredibly fulfilling that we have the chance to help Lauren tell her story and grant her wish to play in a college basketball game," he said. "It's a story we're pleased to be part of even though it has some bitter-sweetness to it because we know there will be an outcome that's sad. But the game on Nov. 2 hopefully will be a bright shining moment for her and her family before all that." 
-30-
Bill R: So to my readers..... I challenge you. 



Know anyone with a challenge as big as this? 
Do you know their wish? Can you help?
Raise some funds? Make some calls, call in some favors; 
or is it just time to pay-it-forward?
If you don't know who, then visit your local hospital (Cancer ward). The nurses may just be able to introduce you to someone who will come to love you as their hero. 
Let me know if you do and how it is going...... 



Thursday, October 23, 2014

We all have the power to "Leave Our Mark"







5,000 people sing "Clouds" to remember a young man https://www.youtube.com/watch?v=bLhUS_QjcZY


5,000 people gather at Mall of America to sing "Clouds" in honor Zach Sobiech - the 17-year-old who, before passing away in May 2013 from osteosarcoma, wrote the Billboard Hot 100-charting single. 

 Zach Sobiech, a teen with cancer, called "Clouds." Zach and the song became a 
worldwide sensation, touching the hearts of millions. 

One year later 5,000 fans gathered at Mall Of America Largest Clouds

Choir to remember Zach, who passed away in May of 2013.

Give it some thought. 

If you knew your future was limited in time..... 

what could you do to leave this world a little better place?

Suggestions Welcomed:

It’s Complicated







It’s Complicated


GlassThis is a post at Widow’s Voice where Stephanie is a regular weekly contributor. 
Recently I’ve had people say to me, when they learn I’ve been widowed, well, you know he’ll always be with you. I know they say that with all the best intentions…and in a way, I agree, because yes, he will always be in my heart. But it’s not as easy as that. Regardless of what my personal spiritual beliefs are, saying something like that can sound awfully close to someone wanting to gloss over the tragedy of the death of my husband and what it means for me in my own life. Easier to say that and hope the conversation will move away from the uncomfortable subject, right? Or am I being difficult here? What do they expect – that I’ll say, oh, he will? Well that’s great, I feel so much better now! Thanks for letting me know!
I do have my own beliefs about what happens to us when we die. And I have my own suspicions about how Mike occasionally makes his presence known…the wind. The birds.
Most recently, a grasshopper. I’m sure it’s not the same grasshopper, because it’s been happening for months, but at certain moments that will only ever be truly meaningful to me, there it is…on a doorknob, on a light switch, on my computer screen…so much so that I have taken to sighing, rolling my eyes in a playful way and saying hey, Mike. Thanks for being here. Miss you. Love you. Or something like that.
But you still can’t tell me he’s really here. Even if he really were that grasshopper for that moment, or using it to somehow tell me he’s around…it’s still not really himHe’s not sitting here in his full, living body, talking to me, touching me, arguing with me, walking next to me, holding my hand…he’s not here, and he never will be, ever again. I can never talk to him again. I can never ask him questions, hear him sing, or wonder what time he’s coming home.
So, while I want to believe in the grasshopper…I don’t want people to say in some wishy-washy way he’ll always be with me. Can I have it both ways? Is it fair to want to tell people to go to hell when they try to reassure me (I don’t, but I want to), and then try and explain about an insect in the next breath?
I really do feel like a walking enigma. My thoughts and feelings are so all over the chart I even puzzle myself some days. All I can tell you is that grief can be difficult to define or delineate, especially to anyone on the outside.
First of all, no one goes through exactly the same experience. We all have our own stories of grief. We might have lost them through sickness, accidents, suicide, war…it might have been a terrible, long process, or a sudden unexpected moment.
We might have been in beautiful, loving relationships. We might have been having problems. Maybe it was both. We might be strong, resilient personalities. We might be struggling with our own identities. Maybe too, it is both.
Those of us in the middle of it all know by now that the process of our bereavement, the timetable of our grief, doesn’t follow any plan, or clock. It may chug along at a fair pace, as life begins to fill in those empty spaces. Other times, or for other people, an eternity passes between each tick, and “life” feels very, very far away. I often have both sensations going on at the same time.
I guess it’s just complicated. As my genius friend Sarah says: the cup is not half empty or half full. It’s both. I’m a strong person and nowadays in public I’m fairly even-keeled and doing pretty well. But I have my moments – moments usually no one but those closest to me know about. Sometimes, it surprises people that I’m still talking about it, writing about it, missing him, grieving him.
I try and explain how that can be…how I can seem relatively fully-functioning on one hand, and yet come out with all this grief on the other. But I can’t really explain it. Nor can I speak for anyone else and their grief; it’s just how it’s happening for me.
Even though I can claim to have experience and understanding of a deep and abiding grief in a way I never imagined I would have this early in life, I also feel like I have no business telling anyone else what to expect or how to deal with it. Nor, may I say, do I appreciate anyone else other than my grief therapist telling me what to expect, how to experience it, what to think, how to behave, or what I should or shouldn’t be doing with it, or about it.
I don’t have an ending to these thoughts…I don’t feel like these thoughts will ever end, or that there will ever be a tidy summation to grief. So for today, that’s all there is.

Monday, October 20, 2014

What I learned about life and death from a falling leaf....





I asked the leaf whether it was frightened because 

it was autumn and the other leaves were falling.... 

The leaf replied, 


No. During the whole Spring and 

Summer I was completely alive. 


I worked hard to help nourish the tree, 

and now much of me is in the tree. 

I am not limited by this form. I am also

the whole tree, and when I go back to the soil, I 


will continue to nourish the tree. So I don’t worry 


at all. As I leave this branch and float to the ground, 


I will wave to the tree and tell her,



‘I will see you again very soon.’


That day there was a wind blowing and after a while,

I saw the leaf leave the branch and float down to the 

soil, dancing joyfully, because as it floated it saw itself 

already there back in the tree. It was so happy. 

I bowed my head, knowing that I have a lot to learn 

from the leaf.


Thich Nhat Hanh 





Like the leaf, many believe we are created (born), live to feed the world we live in and then die. Only to be born again and repeat our journey of nourishing our world.
BR

Saturday, October 18, 2014

Brain Tumours are Not all the same.....




Not all brain tumours are cancerous and not all benign tumours are harmless.

A brain tumour is an abnormal growth of cells arising from the brain or adjacent tissues inside the skull. Brain tumours represent up to 20 per cent of childhood cancers in Singapore and over a hundred brain tumour cases are treated at the National Neuroscience Institute (NNI) annually.
Dr David Low, Consultant Neurosurgeon at the Department at Neurosurgery of the National Neuroscience Institute (NNI), a member of the SingHealth group, explains the basic types of brain tumours, the difference between brain tumour and brain cancer, as well as the symptoms to look out for. 

Types of brain tumours

There are two basic types of brain tumours - primary and secondary (metastatic).
Primary brain tumours
Primary brain tumours arise from the brain and are named after the part they come from. They can either be benign (non-cancerous) or malignant (cancerous).

Benign tumours grow slowly and do not spread to other areas of the body. However, they can still result in severe dysfunction by exerting harmful pressure on adjacent parts of the brain. Malignant tumours, on the other hand, grow rapidly and invade healthy cells in the brain. They tend to spread to adjacent structures and to the spinal column through cerebrospinal fluid dissemination.

The most common types of primary brain tumours are....
  • Meningioma - It arises from the meninges, the membrane covering the brain.
  • Glioma - It arises from the glial cells, which are support cells of the nervous system.
  • Medulloblastoma - Commonly present in children and is the most common childhood brain tumour. It is highly malignant and develops in the cerebellum.
Secondary brain tumours
Secondary brain tumours are also known as metastatic brain tumours and are mostly malignant. They are a result of cancer cells that have spread from another part of the body. For example, breast, lung and colon cancers may metastasise to the brain via the blood stream and result in secondary brain tumours.

“Both primary and secondary brain tumours can affect the proper functioning of the brain and nervous system. If left unchecked, they can cause severe impairment, or even death. It is therefore important to watch out for warning signs and consult a doctor early if symptoms persist or worsen over time,” says Dr Low.

Brain tumour symptoms

Depending on the type of brain tumour, symptoms may vary and present gradually.
Common brain tumour symptoms include the following:
  • Headaches that recur and intensify, especially in the morning
  • Nausea and vomiting
  • Seizures or fits
  • Unexplained drowsiness
  • Double vision, blurring or trouble seeing properly
  • Increasing difficulty with speech and hearing
  • Growing weakness in the limbs
  • Problems with hearing, balance and coordination
  • Marked changes in memory, concentration or alertness
However, some of these symptoms may also be present in other medical conditions. Again, it is prudent to consult a doctor to determine your medical condition.

Did you know that?

  • There are over 120 types of primary brain tumours. The most common types are meningioma and glioma.
  • A brain tumour can be diagnosed based on a CT scan and an MRI. However, to determine the type of brain tumour, a biopsy is required.

Bill Robson C.A.E., ATM gained his experience in grief as a
  • Grief Counselor
  • Distress Telephone Centre Trainer  
  • Hospice Volunteer
  • Group Facilitator, Bereavement
  • Youth & Family Counseling  
NOTES:
There are resources in many communities, call your local volunteer bureau for a list of organizations that can assist you.

Wednesday, October 15, 2014

My Doctor says... "All I need is LOVE...."

From a fellow Blogger


doc-mum.blogspot.com/


I had my first session with a psychiatrist yesterday, and it was worth it. 
18 months after suddenly losing my son......



Here is a summary of what we discussed:


  • when a mother loses a child there is a biological need to scoop that mother up and nurture her for a prolonged period of time. I haven't had that from anybody. Instead I went back to work 3 days after the funeral due to financial commitments, then quickly moved house and lost my father. This has resulted in an inability to grieve properly....i.e distorted bereavement.
  • all I need is LOVE....
  • I have 'adapted' to my situation in a way that has made me somehow function. This is the 'strength' that people refer to. It is the difference between me functioning and me dissolving. It is a good thing and has stopped me from plunging into depression, but it has taken every ounce of energy out of me. 
  • I need to carry a token of Will around with me.....a symbol of the fact that whilst I don't believe I will see him again, I do know I carry him (in the form of one of his guitar picks) with me in my heart forever more.
  • I need structured time off with the task of filling that time with things that I enjoy, not just wallowing. I need to laugh and feel loved.
  • At work I need to be prepared for challenging patients, for they are ever present.
  • I need to continue therapy - it creates that 'supportive space' that I have lacked. 

So here's to a slower recovery pace, with the love of my friends, and the help of others. 

Tx